info@action4send.co.uk

He’s only 8 – Sick of paperwork battles and lack of joined up social support for a family.

  • Today LCC chief executive has reiterated the Planning Officers decision not to lift the Tree Preservation Order on our oak tree (so we can pay to fell it).

    LCC have paid to fell trees over hanging gardens of similar children – I was at the meeting.
    Yet we have a bigger tree in his own garden we can’t pay to get rid of.
    (Apparently parks and gardens department can act differently, as ours is a TPO tree – so it’s adequate for Yanni to be in a small fenced off area of the garden which I’d need to sweep regularly. He may display challenging behaviour as he is very used to constantly using his swing and trampoline as he is so hyperactive/sensory seeking. This area of garden would remain unsafe – with myself or Georgia constantly asking Yanni to ‘spit’, detrimental to his safety/wellbeing as well as Georgia’s stress/wellbeing. We actually intend to tarmac the whole of the garden as he eats/plays with the mud and eats any mushrooms growing in the mud – but we can’t do this as then the various tree detritus twigs, leaves, acorns, tree flowers become even more dangerous if he’s not also eating mud.]
    If I spend time checking the garden he may wet himself (or worse), climb, get food from the kitchen, find something small and put it in his mouth, headbutt the wall or Georgia.

    Planning granted for the sensory room 3 months late – but we don’t want to pay the expensive groundworks to protect the tree’s roots.

    Sensory room is an element we have added so he can play safely at home as he grows as he climbs, is very active and a hammer hard headbutt. Added to a DFG he was awarded by CHAD OT in August ’17, so as its the same contractor these safety adaptations to the home haven’t gone ahead.

    Network rail has just felled hundreds of trees along the railway in Guiseley.
    Local greenbelts are under threat of development, including Coach Road closeby.

    Before Christmas I posted the appeal to the Secretary of State. Apparently they don’t want to look at the written submission. They want a hearing – which I would prefer not to as it will be time consuming and stressful.

    Yanni has been headbutting the wall and me alot recently, at home and out of the house.
    Achilles crones has been very sore over Christmas – an MRI will determine if he needs another operation – understandably this is also making him depressed.
    I’m very worried about the affect this will have on my fragile wellbeing – as a direct result of the stress of gathering evidence for the appeal form just before Christmas, I’ve decided not to put the added time pressure on myself to do the L3 Teaching Assistant Course in the Spring or look for a part-time job in a preschool at the moment (I’ll continue with some of the voluntary work experience).

    I’m seeing CAMHS LD tomorrow to discuss his behaviour.
    I’m still waiting from SENSAP regarding his recent multidisciplinary EHCP review regarding his possible school placement.

    They had supporting letters from CHAD OT, CAMHS LD, paediatrican, GP.

    On the strength of unfortunate James Frankish article National Autistic Society have provided Yanni with a supporting letter. Front page article in local paper:https://www.wharfedaleobserver.co.uk/news/18178970.mothers-fight-keep-son-safe-removing-protected-tree/?action=success#comments-feedback-anchort

  • Peition set up after with a second small article in local paper: https://www.wharfedaleobserver.co.uk/news/18195262.mother-launches-petition-fell-protected-tree/
  • [Haha, for your parent carer stress folder!
    Yanni was a handful when he was in nursery/he had a younger sister. Started climbing everywhere just before reception and upset through continued poor sleeping. Starting toileting in his Yr1 was relentless – still doubly incontinent (my mum in Middlesbrough had emergency dialysis as was extremely unwell/my husband had a section of chrones removed. Yr2 sleep medication, but for 1 year our marriage was extremely strained. Yr3 and summer holiday before frequent hammer hard headbutts to me and the wall at home/out of the house.
    Yr1 refused Blue Badge twice, then I appealed low rate mobility element DLA – easily awarded with 2 clinic letters.
    Yr1 he’d dropped 2 centiles & I lost half a stone through exhausttion. CHAD social worker refused – initially school refused to do an Early Help Plan. Scope and cluster team manager initially unhelpful – delayed Direct Payment referral suggested by Peadiatrician by 1.5years (4hrs Direct Payments started Yr3 to benifit younger sister).
    SENSAP didn’t notice Yr1 EHCP review not uploaded/ Yr2 review took 9 months to get draft & not finalised before Y3 review/ Y3 was a multidisciplinary EHCP review partly to determine possible SILC provision for September 2020 – caseworker very rude to school staff, though he did apologise.]
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  • : Don't remember any problems. No final draft since August 2016 - he's now Y3.
  • : Excellent mainstream. Hoping for SILC school September 2020.
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