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Nobody Listens

We started on the autism path when my son was 4. They said he had many traits but not enough for a diagnosis. Schools lied about his behaviour in school, but other parents told me what their kids witnessed my son doing. I was my sons punching bag. He couldnt cope with anything, as he grew older the voices in his head started, telling him to kill himself and others. The pead was useless in her words YOUR SON IS NOT LIKE MINE SO CANNOT BE AUTISTIC! At 8 he attempted suicide for the first time. He was sent to CAMHS and our nightmare began. After having play therapy for a year they asked me would i be willing to talk to someone to. So i did if they could help it would be great. My son got worse so i panicked. Barely sleeping incase he hurt me or him. I told camhs i was panicking. My son drew me pictures of himself going with death. And of himself with 2 faces, good M and evil M. He said he was 2 people. The more i told camhs of how M lived the more they twisted what i had said. I tried to get a second opinion but the two women stopped it saying it was me who was ill not my son. They decided i had munchousen syndrome/FII and after 4 years with camhs and 9 suicide attempts they brought in social services! They had my son placed on an at risk register AGAINST ME! The social worker who came said i am going to say alot of stuff you dont like but its tough thats my job!i finally found parent partnership who fought by my side for a second opinion away from camhs, the man who saw my son asked why when he had ocd, struggled with change, new people, new places, loud noices, clothes on his skin, stimming , same tiny diet of food. had no one redone an autism assessment. I cried, he said he wanted a matt assessment doing. Every person who came to do their part in it all agreed he WAS aspergers. He got his official dx in dec 2013. In jan 2014 he was removed from the register. No sorry no nothing. The people from camhs involved in our case lost their jobs. But they broke my son by their actions. After lengthy talking to my son i found out his lady at camhs was telling my son not to trust me as i was poorly in the brain! His one support was me. His dad died while i was pregnant with him. All he had was me and they did that! I put in complaint after complaint but no one ever listened. It took 9 years in all to get his dx from a man that finally listened! This is just a snippet of 9 years of hell. My son is now 20 in march and at councilling for the damage camhs did to him. Hes had a girlfriend for over a year. And due to move in with her soon. Its been a whirlwind but they never broke our bond. That is our story.

  • : facebook
  • : 19
  • : Male
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  • : Cumbria
  • : Yes
  • : Cant remember
  • : Hospital home tuition
  • : Ramsden nursery and primary, greengate juniours, 1 year in furness Academy till they broke him, then new grove.
  • : NEW GROVE. HOSPITAL HOME TUITION.
  • : Still ehcp,
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  • : not_applicable
  • : no
  • : yes
  • : no
  • : yes
  • : yes
  • : yes
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1 Response
  1. Hi Beth.
    Thank you for sharing your story with us.
    I just wanted to say that i felt every word. Thank you for trusting us with your experience.
    We promise we will use this for the greater good and do not take for granted how much emotional energy it has taken to write as i felt very emotional when i shared mine.
    Sending you a virtual hug.x

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